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Overview

A connection with a peer is an opportunity to ask questions, share stories, get practical suggestions, make a friend, build community and find encouragement in the shared experiences with others. 

Frequently Asked Questions

  • Who is eligible to join this program? People with cystic fibrosis and their family members ages 16 and older are eligible to join CF Peer Connect. 
  • Who are the peer mentors?  Peer mentors are adults with cystic fibrosis and family members of people with CF ages 18 and older who have offered to share their experiences and connect with a peer like you. Mentors vary in age, live in all regions of the U.S., and have a wide variety of experiences to share. They complete a short orientation that provides them with the tools and resources they need to offer support 
  • How am I matched with a peer mentor?  Matches are thoughtfully selected by the CF Peer Connect team. For every person who requests support, we look for a peer mentor who has experience in the topics that matter most to that individual. We can also match for other aspects of identity, such as age, gender identity, health status, ethnic identity, and sexual orientation. Personalized requests are accommodated as much as possible. Once the connection is made, you will be notified via email. 
  • How long will the peer support match last?   CF Peer Connect is intended for short-term peer support over the duration of three months. You and your peer mentor will work together to determine how and when you want to virtually connect. If you and your peer match mutually agree to continue communicating after that, you are welcome to connect informally outside of the CF Peer Connect program.

Looking for connection?

Get connected with a someone with similar experiences! 
    

 

  

Match DOs

  • Think about what you want to get out of this experience. Would you like to ask questions, share challenges, hear experiences? It is helpful to come to the first conversation with several questions in mind for your mentor.
  • Connect in a way that will facilitate connection and feels comfortable to you. We recommend video, but you may also choose to connect by phone, email, or even text.
  • Contact the CF Peer Connect team at peerconnect@cff.org if you feel like a match is not a great fit. We would be happy to provide you with a new match. 

Match DON'Ts

  • Don't expect your peer mentor to know all the answers. 
  • Don't ask your peer mentor for medical advice. Consult your care team if you have questions about your treatment or medications. 
  • Don't expect your peer mentor to be on call or available 24/7. Schedule meetings that are convenient for both of you.